Join me in supporting the MGFA Walk!
I was living the life of a very happy, healthy, active mid-fifties year old, and I had all the energy that life had to give with some extra at the end of a long day. I was eating a healthy diet, exercising seven days a week and battling the odds of having hereditary high cholesterol and hypertension. Each morning I was up before the crack of dawn ready; putting on my running shoes instead of work shoes. I arrived at the gym door when it opened at 4:45 AM; and I ran five miles on the treadmill and worked out on several of the conditioning machines. Afterward I would prepare for an eight plus hour workday as a Neurology RN.
I thought that I had my life all planned out, WRONG! My last plan in life was not to be slowed down by a rare neurological disease, but I learned that life does not always follow the journey we have planned. I began symptoms of MG in 2004 and was diagnosed when symptoms worsened in 2006.
As an Ambassador of MG, it gives me the opportunity to share with other MG patients, wherever my journey leads me, that they are not alone in the world with the rare autoimmune disease and it matters. We, in the Myasthenia Gravis community know that if we join together, we gain strength in numbers, and together as snowflakes we can have a snowball effect in raising awareness. Each person with MG has their own story to tell, which some may be similar, but there are no two alike. That is why we are often referred to as the “Snowflake Disease.”
I have learned that I AM MG STRONG, because when I am weak, I am strengthened by keeping my faith through the adversities. I appreciate the opportunity to share with you, as I raise awareness of MG. I may walk the shoes of the rare disease MG, but it is not the end of the world. I am thankful each day that I have kept a persevering, can do, positive attitude. I know now that I can use it in a positive way in advocating as an active voice in raising awareness of MG and the MGFA
Together We Can Make A Difference!
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