I am excited to be supporting the Myasthenia Gravis Foundation of America (MGFA) through the MG Walk.
About 12 years ago I started struggling with muscle weakness, specifically in my hands. I had no idea what was causing it and couldn't fully explain to others what it felt like. I visited doctors, but was always given a clean bill of health and no one had an explanation for my tremors. I stopped searching for answers and dealt with the weakness and pain, until I could no longer ignore it.
While in law school I started experiencing double vision, a droopy eyelid, slurred speech, trouble breathing, and even more fatigue. After a year and a half of doctor visits, MRIs, blood tests and other examinations, I was told over and over "your results are clear." This was extremely frustrating because I knew something wasn't right.
Finally in 2019 my eye doctor mentioned MG and referred me to a neurologist who specializes in MG. After another round of tests, I was diagnosed with Myasthenia Gravis. Beginning of 2020 I had a thymectomy to remove my thymus gland and a thymoma (a tumor correlated with MG).
Now that I am aware of what is happening with my body, my goal is to help spread awareness about MG, so that others do not have to experience symptoms without a diagnosis or treatment like I did.
There is currently no cure for MG. I don’t want for MG fighters to just manage symptoms the rest of our lives. This is why I am raising funds to support research in finding a CURE.
The MGFA is the only national volunteer health agency in the United States dedicated solely to the fight against myasthenia gravis.
MGFA is committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs, and advocacy.
Please make a pledge to help me reach my goal OR register to join me in the Coast-to-Coast Walk!